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I’m turning one!

June 30, 2013

Oliver is going to be a year old on Tuesday. Excuse my language but holy shit. He was going to die. He couldn’t breathe on his own. His organs were all wrong. He was the king of pulmonary hypertensive crises. He had to go back on the oscillator and was never going to make it to surgery. Now he is going to be one. A happy, healthy, freakin adorable one year old boy. I’m crying as I type this. I can’t believe a miracle happened to me. I can’t believe how awesome my miracle was. I can’t believe how lucky our family is. Because Oliver is not just alive. He’s full of life!

He couldn’t be sweeter or snugglier or happier or more fun to be around. He claps, he crawls, he plays peek a boo. He laughs so hard and is obsessed with Poppy and our dog Forrest. He is absolutely undiscerning about food and will eat anything, even stuff you and I wouldn’t call food. Like pinecones and sand. He pulls himself up to stand and then plods down on his cute little tushy when he’s had enough. He bangs his head at least once a day because he’s so busy exploring. He is completely normal and totally charming.

He’s done so well this year in terms of his health. His doctors were really pleased that despite having gotten quite sick he didn’t need to be hospitalized and he didn’t lose any weight. His left nub looked like it’d stopped growing but now it looks like maybe it is. He had me all worried at his neonatal follow up clinic because he scored quite low on his gross motor but he’s since caught up and his communication score was very high. So mama can chill a bit. And most excitingly because his lungs have proven themself so resilient he’s now allowed out in public. We celebrated with a trip on the bus and subway which were enormous hits with both Ollie and Pops! In short, life ifs amazing. He’s had a lingering cough which could be post viral, allergies, reflux, or asthma. There’s no real way to tell yet so we’ll look in to it more at his 18 month follow up. He’s a miracle. And we are so incredibly grateful to have been so blessed.

In honor of his birthday we are trying to raise money for our beloved Dr Coxs CDH research project. Both as a thank you for saving our Ollie and to help prevent other families from having to go through what we did. If you’ve ever thought you’d like to make a gesture of gratitude to sick kids we would love if you’d consider joining us. This is the link to our fundraising page: http://my.sickkidsdonations.com/PersonalPage.aspx?registrationID=1930271&LangPref=en-CA#.UcnhVIokJ4s.facebook

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16 Comments
  1. Lani permalink

    A very happy birthday to an amazing little man. Hugs!!!

  2. Corinne permalink

    Holy shit is right!! I love this post, Alex. YOU are full of life and humour and love. Lucky kids.
    Corinne
    Mama to Samuel, lcdh, Feb1/11

  3. Sarah permalink

    Happy Birthday Ollie!!!! What a miracle he is!!

  4. Mom of two permalink

    He’s just beyond the words adorable! Good job mama!!

  5. Ann W. Friedman permalink

    Hi Alex,

    I share those tears of grateful joy with you all. My Mom is coming to your celebration on the 7th with Jill and David. She’s really looking forward to seeing everyone.

    Wish Julia and I could be there, but we’ll be sending you good vibes from Copenhagen. *<:)

    Xo Ann

    Sent from my iPad

  6. Jodi permalink

    Many happy returns Oliver

  7. Alex permalink

    You never told me left nub was growing! Grow nub grow! I have felt helpless countless times since Oliver was first diagnosed. Everytime I felt overly helpless I would make a donation to sick kids. If I ever meet Doctor Cox I’m going to plant a big smooch on him. Happy (almost) birthday little man.

  8. Bambie permalink

    Happy 1st birthday to Ollie! What a miraculous milestone.

  9. Laura permalink

    YAY!!!! He’s so stinking cute, I may fall over 🙂 All babies are miracles, but for you guys to nearly lose Oliver, and for him now to be the chunky monkey he is and such a healthy one, is beyond miraculous!! 🙂

    Lots of love to the whole family.
    ❤ Starbucks Laura ox

  10. Alex….
    “He was going to die. He couldn’t breathe on his own. His organs were all wrong. He was the king of pulmonary hypertensive crises. He had to go back on the oscillator and was never going to make it to surgery. Now he is going to be one. A happy, healthy, freakin’ adorable one year old boy. I’m crying as I type this. I can’t believe a miracle happened to me. I can’t believe how awesome my miracle was. I can’t believe how lucky our family is. Because Oliver is not just alive. He’s full of life!”. Stop. Stop!! You are touching my deepest emotions!! 😉
    “His doctors were really pleased that despite having gotten quite sick he didn’t need to be hospitalized and he didn’t lose any weight. His left nub looked like it’d stopped growing but now it looks like maybe it is. He had me all worried at his neonatal follow up clinic because he scored quite low on his gross motor but he’s since caught up and his communication score was very high. And most excitingly because his lungs have proven themselves so resilient he’s now allowed out in public.”. Thanks be to God!! ;-D
    Happy, happy, happy birthday, Oliver!! Here’s to many, many, many more!! Wanna push 30 for me someday…. Like I am now? 😉
    –Raelyn

  11. Greg permalink

    Happy birthday to Ollie! Sorry I couldn’t be there to celebrate with you all.

  12. alba tucci permalink

    Happy Birtthday Oliver!!!!!!!

  13. Jemma Chalmers permalink

    Best birthday news ever! Have a wonderful day Ollie, and be good to your Mum (and Dad, sister and general extended family), they deserve it! Much love from Australia xo

  14. linda ogea permalink

    Happy Birthday Oliver from your CDH buddy Evanand his Grandma Linda. Alex,Thank you for all the support that you gave our family.Thinking of you always

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