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CN Tower Success!

May 7, 2013

We were blown away by how wonderful the rally at the CN Tower was! It was a cold, horrible night, yet so many people came our to show support and raise awareness. It was truly awe inspiring. From friends we see all the time to friends we haven’t seen in years, from our parents to friends friends, to friends of friends parents, from Sick Kids staff (hello you amazing people!) to former sick kids and their families, we got to spend a very cold hour with some of the very best people on the planet! The kids had a blast playing, the grown ups enjoyed delicious cupcakes, and everyone did their best to stay warm in CDH tshirts Oliver’s amazing Godmother had made for everyone. We got to meet four other survivors and their families, which was amazing and inspiring and seeing such awesome, happy, normal (except even better!) kids gave me so much hope for Ollie’s future. Then the sun went down, the tower lit up, and an amazing night got even more amazing. To see the biggest, brightest, most noticeable part of our cityscape lit up in honour of all the little CDH angels and survivors was so powerful that there are no words to describe it. An enormous and endless thank you goes out to everyone who had a part in getting it lit, especially Shannen Bailey, angel Asjiah’s mom, who is a beacon of strength and amazes me every day in her efforts to raise awareness and continue to fight CDH in her daughter’s honour. And thank you to everyone for coming out despite the awful weather, it meant the world to us to celebrate with you!

This Sunday, I’m sure you know, is Mothers day. Yesterday was Bereaved Mother’s Day, a special Mother’s Day for mommies whose babies live in their hearts but who they do not get to hold here on earth anymore. If you know someone, like Shannen, who has suffered such an unimaginable loss, please give them a hug this week and remember to wish them a happy Mother’s Day this Sunday. ❤















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  1. Ann W. Friedman permalink

    Hi Alex,

    Glad to hear everything is going so well for little Ollie and your family.

    The CN Tower looks great lit up like that in pictures. 🙂

    Best to you and everyone,

    Xoxo Ann

    Sent from my iPad

  2. It warmed my heart to see that CN tower illuminated in the colors of CDH!! Warmed. My. Heart. You are doing such an amazing job of raising awareness for this life-threatening birth defect. To which I am eternally grateful. Keep up the good work!! 😉
    As promised, I was there in spirit!! Did you feel my presence? Hee, hee, hee…. ;-D

  3. Happy Mother’s Day, Friend!! 😉

  4. Paula permalink

    It was such a great night. You and Shannen and all your helpers did a great job organizing. It was so great to meet you in person and it was so awesome to introduce Wyatt to other kids born with mixed up tummies (that is how we have attempted to explain to him). It was so great for me to see those 2 teens, looking like they are thriving..hope for all of us. Your kids are beyond cute and Ollie is at that squeezabe age…had to stop myself :).

  5. Alex….
    It has been one month since you last posted on this Blog!! I am missing Oliver, my Kindred Spirit CDH Buddy!! I hope that he is well. I hope that he is thriving. I hope that he is reaching milestones. I hope that he is continuously proving doctors wrong, and kicking CDH’s ass!! 😉

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